Myotonic Dystrophy

…but you don’t look disabled

well you don't look like an imbecile, but here we are.

I have an incurable neuromuscular disease that affects me every second of every day; it’s just that nobody (who hasn’t got it) knows what it’s like.

I don’t shout it from the rooftops. Why would I? Why should I? I shouldn’t need to “prove” my disability.

Just because I look fine, it doesn't mean I am fine./

I have been sat parked in my car in a disabled bay with my blue badge and still had suspicious looks and even comments that he is pretending to be disabled. Because you don’t look like you have any problems at all. WTF? What the hell am I supposed to look like? Lying on the floor of the car? Falling over? Dribbling uncontrollably?

My disability is not a prize I’ve earned that gives me the right to better parking or more attention. I didn’t go to my doctor and beg for my disability status. There is not one disabled person who would prefer front row parking to a life without pain. I know I would gladly trade in my handicapped tag if it meant I could have the life I had before Myotonic Dystrophy took hold.

Why do people, who have never met me. Who have no knowledge of what condition I suffer from feel they have the right to judge.

YOU DO NOT HAVE THE RIGHT TO JUDGE A PERSON ON ANY LEVEL. NO ONE CHOOSES TO BE DISABLED.

If you are one of the morons who feel you can judge and comment then you are not welcome on this site and I ask you to leave. Now.

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